Dementia — Page 3

July 11, 2015 By Diana

When I see the wonderful themes that come from the fine people at SheLoves each month, I am always surprised at what comes to me. This one is no exception. I’m not writing about my mom too much in public these days, but here are the most recent reflections. You can start here and follow this link to finish this piece and join the conversation. Please do!

The part of my life that needs me to be ‘easy’ right now happens to be the hardest one ever. My mother lives within five miles of our home and turns 94 this month. She loves it when I drop by, she smiles right through the telephone when I call her, she tells me I’m the most wonderful of God’s creatures, even though she is not entirely sure who I am.

Because my mother, in addition to being one of the loveliest women I’ve ever known, also has dementia. Her brain is deteriorating, week by week. She has lost most of her memory, including all 63 years of her marriage to my father, has only very limited mechanical ability of any kind, and more and more often, leaves her sentences hanging in the air after about three words, leaving me to wonder where in the world she was headed. When I am with my mother, what she most needs me to be is relaxed, present, patient, slow.

Too much of the time, I am NONE of those things.

Loving a person with severe dementia means you continually live with a large load of cognitive dissonance. In my head, I know that she cannot understand, cannot remember, and cannot move quickly, either physically or mentally. But with my heart? I want her to be as she once was: fast-witted, funny, vivacious, interesting, well-read, deeply spiritual.

Who she is now. . . is slow. Her brain is losing itself, day by day. Scientists do not yet understand all the complicated mechanisms that make this true, but this much we do know: the part of her brain that remembers things is disintegrating. The part of her brain that understands how things works, how time happens, what she said 30 seconds ago is almost entirely non-functional.

So when I hand her a napkin at lunch, she has no idea what to do with it. I say gently, “Put it in your lap, Mom.” And she moves to pick up the knife and fork that were just wrapped in that napkin, sending them to her lap.

Because she has always had a gift for sociability, and is a natural extrovert, she has maintained a semblance of those characteristics. She has a ‘routine’ that she follows when we are together. Ten times in ten minutes, she asks the same set of rote questions: How is your family? Have you found a church you like? Where is your husband? And the biggest one of all, ever-present: Do you ever think about moving?

“No, Mom,” I always say. “I like it here. We plan to be here until we die.” And some days, I swear to you, I want her to hear and understand that verb. I want her to grasp that she is dying, that I am dying. We are all dying. Most of the time, she hasn’t a clue. . .

Come on over and join us at SheLoves . . .

The Mystery Remains

May 15, 2015 By Diana

Once again, I am overwhelmed by your response to a post about my journey with my mom. It never ceases to amaze me how great an epidemic this is in our land, how many people are walking this hard, painful road through the death-by-inches and loss of self that is dementia. Thank you for your kind words and your stories — they mean the world to me, and to everyone who reads through that long comment thread.

This week has been one of gradual healing, slowly regained mobility and living right smack dab in the middle of deep wells of gratitude. I’ve spelled out a few reasons why in today’s newsletter (you can subscribe at the bottom of this post if you’d like), but I will just say here that the human body is both fragile and miraculously resilient and I am celebrating the gift of my own body in ways I never have before.

I have abused this vessel for many years, in many ways: too many calories, too little exercise, too much stress. Slowly, slowly, I am learning to appreciate how very well it has served me over my life and I am living more fully in it than ever before. That is no small gift for a little girl who hated her height/skin/hair/self and always felt awkward and clumsy.

The bruises from my time with mom on Mother’s Day are healing as well. I dropped off some supplies two days later and as she saw me, her eyes welled with tears and she said, with great hesitation,”Are you still mad at me?”

I almost wept again.

Somewhere in the confusing tunnels of her brain, she knows that she has upset me. And she is sorry for it.

I am sorry, too.

A trusted friend and counselor said to me this morning, “You know, Diana, your letting go of that Coumadin is a strong metaphor for the way in which you must let go of everything else that makes you bleed.”

Everything else that makes me bleed.

Well, wow.

Exactly.

I must continue to learn how to let go of these old wounds, to offer them to my Savior as a means of grace, to say ‘thank you’ for the good gifts first and forever, to release my mother’s ultimate care and safety to Another.

I am not now, never have been, and never can be responsible for her health and happiness. That is the lie that she and I have believed for far too long and it must be jettisoned. It must be.

We cannot, any of us, be ‘the answer’ for another human person. It is not possible, nor is it desirable. We can be instruments for healing, we can be companions on the way, we can laugh and cry and worry and wonder with one another. But we cannot, we must not, we dare not ever try to fix one another.

We don’t have that power. Thank God.

There is only one source of Healing in this universe, and it pours out on us all day after day, in mess after mess, through trial after trial. It shows up in medicine, psychology, friendship, good marriages, good parenting, healthy politics (is there such a thing?). But the Source is the same. Everything that is good and right in this universe comes from God alone.

Not me.

Not you.

Through me, hopefully, yes. And through you, too.

But we do not have to generate it, invent it, or even package it. We simply have to allow it. That is all.

So I am learning again to say, “YES.” With as much of me as I now know, I say, “Yes.”

And I say, “Thank you.”