Zip-A-Dee-Doo-Dah

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The song of the week, that’s what it is. Each week, when I take my Mama out to lunch, she sings a song of one kind or another. About a month ago, it was, “I Don’t Know Why I Love You Like I Do.” Two weeks before that it was, ” Life Is Like a Mountain Railway.” I never know what tune will show up and it is always intriguing to see how often she sings it during our 90 minutes together twice each week.  

Do you remember it? I didn’t, until she started to sing it. And she got all of these words, too:

 

Zip-A-Dee-Doo-Dah
Zip-A-Dee-A

My oh my, what a wonderful day
Plenty of sunshine heading my way
Zip-A-Dee-Doo-Dah
Zip-A-Dee-A

Mister bluebird on my shoulder
It’s the truth
It’s actual
Everything is satisfactual

Zip-A-Dee-Doo-Dah
Zip-A-Dee-A
Wonderful feeling
Wonderful day

— by Allie Wrubel and Ray Gilbert, for Disney’s 1946 film, “Song of the South”

I’m telling you, friends, you haven’t lived until you’ve heard a lovely, frail 95-year-old, dementia-stricken woman singing that song with all her heart, especially that line about the bluebird. Something about the word ‘satisfactual‘ spilling out of her just undoes me.

Because so much of her life is anything but satisfactual, isn’t it? At least, as we are trained by our culture and our own life experience to understand what a satisfying life looks like.

I miss so much about the mom-that-used-to-be — I miss sharing good books and conversation, I miss making fudge when we’re feeling in need of a pick-me-up, I miss watching her ride the southern California waves on a boogie board, I miss her sharp insights into people and situations. Yeah, all those things are no more. That is true.

But. BUT. As hard as it is to walk this road, as tired as I frequently get by the constant repetition and confusion (as this post loudly attests), beauty remains.

Snippets of today’s conversation:

“Oh, I am so glad you called on me and are taking me out for a drive!”
“Isn’t this a beautiful city?”
“I just love to go driving!”
“Do you think I might bring my parents here someday? (
Meaning her caregivers, I have finally figured out!)
“You are such a wonderful person, so kind to me and so beautiful, too.”
“Thank you, thank you so much for this beautiful day!”

And in and around it all was that gloriously silly song.

Kinda made my day.

Battle Fatigue

IMG_0459You know, it’s just lunch. Simple, right? I get in the car, I drive over to Mom’s care facility, I punch in the magic code to open the door, I gather her up, confused and beautiful as she is, I open the door so we can both go out into the sunshine.

She says, “Do you really want to bring this old thing?” pointing to her walker.

Every time, she asks me this question.

EVERY TIME.

“Yes, Mom. You can’t really walk well without it and it fits right into the back of my car.”

I settle her into the front seat, lock the seat belt around her, nudge her gently to move her feet completely inside the car. I load the walker in the back and come around to the driver’s door, belt myself in and begin to drive out of the residence area.

“What a good driver you are. What a nice car this is — so smooth!”

“Thank  you, Mom.”

I hear these two sentences EVERY SINGLE TIME WE GO OUT, which is every 3 to 4 days. But 3 to 4 days is an eternity to someone whose brain is full of holes. 3 to 4 minutes is an eternity. Somedays, 3 to 4 seconds.

“Now tell me your name again and why you came over to get me today?”

And we’re off. The litany begins.

Again.

And again.

“Do you have children?”
“Do you live nearby?”
“What do you do?”

“Where are we going?”
“Why are you being kind to me?”
“Now tell me your name, please.”
“Do you know my family?”

Round and round we go, the same set of questions, the same set of answers.

Today we went to a place we have not visited often. She is, however, convinced that she has been here, “many years ago.” Often, this is at least partially true. Not today. We’ve been here exactly twice in the last 3 3/4 years.

The sun is warm, but the restaurant, located directly on the sands of Ledbetter Beach, acts as a wind tunnel for the ocean breeze. She is immediately shivering, despite being fully covered with two layers of clothing.

So I return to the car, get my wool shawl and my wide-brimmed black hat with the droop-down brim and wrap her up as much as I can. She continues to hold down the brim of the hat or to place her hand over her ear during the entire meal, despite the fact that she is no longer in direct contact with any kind of air movement whatsoever. Once cold, always cold, I guess.

I order her a diet Coke and get a glass of water for myself. We sip quietly as we wait for our lunches to be delivered — a kid’s sized grilled cheese with fries for her, a salad with grilled salmon for me. 

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“Here, don’t you want some of this?” she asks.

And she asks.

And she asks.

AND SHE ASKS.

“No, Mom, ” I tell her each time. “That is your drink. See, I have one of my own. I don’t need yours.”

When lunch arrives, she relishes each bite. But begins immediately with the same, recurring question/statement: “Oh  my, this is delicious! I am so happy, so happy, so happy! Here, take some of this. It is really good.”

She seems to be unable to see that I am already eating from a very full plate. I tell her exactly that, every single time she invites me to eat her lunch. “No, thank you, Mom. I have my own lunch. I don’t need to eat yours. Please enjoy your meal and stop worrying about me — I am doing just fine.”

“Well,” she says timidly, “I surely do not want to ever seem to be selfish.”

“You are not being selfish, Mom. You’re enjoying your lunch, which is yours, all  yours. Please enjoy it!”

After I finish my salad — which I always do, LONG before she is halfway through her own plate — I begin to take a French fry or two from her plate. And she is ecstatic!

“Oh, here! Have some more!”

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I cannot even begin to put into words how deeply enervating I find these outings. I love that she loves to go. I love that she finds happiness in simple things. I love her. But being with her is the most exhausting thing I do these days.  

And there is no end in sight.

I heard a bit of a cough today and, God help me, I found myself wondering if this might possibly progress into something serious, something that might help her transition to that place where she will once again be able to think and remember. 

That is not likely. She is 95 years old, can’t see, can’t hear, can’t remember, can walk short distances only. But otherwise, her health is excellent. Her mother lived to be 101. Her mother’s sister to 102. So chances are, she’ll be with us physically long past the time when what remains of her mind has completely left the building.

I give thanks daily for her life. I see the beauty shining out of her face, the unceasingly cheerful spirit that is indomitable and gracious. I enjoy her occasional attempts at humor and the increasingly rare flashes of that mom-that-used-to-be insight and self-deprecating trash talk. (Today for example: “I imagine those children I hear are looking over here and wondering what strange sort of woman is sitting there under that hat!”)

But I am tired. I am tired of continually telling myself to keep my ever-present impatience at bay, to respond with kindness to the 20th version of the same comment/question, to smile, to hug, to touch, to encourage. I do it, yes, I do it. But sometimes it feels forced, even phony, and I don’t like that part. No, I don’t like it at all.

So I am weary at times. Today is one of those times. I returned her to her room a bit earlier than usual, settled her into that recliner chair in the corner, the one by the window that looks out onto the patio with bright red geraniums. I kiss her and tell her I love her and that I’ll see her next week. I find someone on the care team to tell them she is back in her room.

And I exit the building as fast as these aging legs of mine will carry me, willing myself not to cry out, “How long, O Lord!! How long?”


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When There Are No Easy Answers

Dementia is a strange process. My mother has been diagnosed with Alzheimer’s disease, but who knows exactly what kind of dementia she suffers with? On the way home from our quite wonderful worship service today, I said to my husband that I needed to be with my mom today — wonderful family events have filled our days during this graduation season and my time with her has not been quite as frequent as usual. And the sermon was on the centrality of the cross to our faith, with an emphasis on the power of self-denial (not self-abnegation or self-abuse). We were reminded, with great care and attention, that the centrality of our call to follow in the footsteps of Jesus from day to day is to, ‘pick up our cross.’

As self-serving as this may sound, I know what my cross looks like these days.

A quiet afternoon at home today would have been nice after our hectic week. A nap would have been nice. It is possible I was not in the best shape to spend three hours caring for my mother this afternoon. In truth, it is more than possible. 

As usual, I called her unit and told them I would be there at a certain time, could she please be ready? When I arrived, she knew someone was coming to get her, she knew that I was important, but she didn’t quite understand who I was or why I should come to take her out.

I do this, on average, every 3-4 days. Not daily, not yet . . . maybe never. But often and regularly. Each time, it is brand new to her.

These are the regular questions during the first five to ten minutes we are together . . . every single time:

“Where are we going?”
“Should I bring this (pointing to her walker)?”
“What a nice car! It rides so smoothly! Sure is a good thing I’m not driving — look at all those cars!”
“Now, who are you again?”
You’re my daughter?” 
“Oh, my goodness! How smart of me!”

We drove around and around the parking garage at the mall, searching for a place to put the car that wasn’t too far away from an elevator. She kept asking questions the entire time, a litany that went around and around the same territory.

Finally, a spot opened! In we went, out came the walker, out came my mama. Slowly we made our way across the row of cars to the large, very slow elevator, taking it up to the ground level and walking across the breezeway to California Pizza Kitchen.

After safely ensconcing both of us in the booth, I began to peruse the menu, trying to decide what to get for the two of us. We usually go out for lunch during the week and the CPK menu changes on the weekends. While I searched, my mother kept talking. Some of it was routine, some of it was convoluted, some of it made no sense. 

“Mom,” I said carefully and clearly. “Please do not worry so much. Let’s just stop and look around this lovely place and be glad we are here together, okay?”

She took a breath, I went back to the menu. Then she started in again. At a loss for what to do next, I picked up my cellphone, holding it in front of my face and I started taking pictures of her lovely, expressive face, wondering how to deflect this almost frantic routine. 

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“I don’t have any money. I can’t find it. I’m feeling a little confused, I guess.”

“What are you confused about, Mom?”

“Well, I think I need to find something to do, something that’s helpful.”

“What are you thinking about doing?”

“Well, I was thinking about where I go to get this done (pointing to her hair), and wondering what I might be able to do to help her up there.” (The beauty parlor is across the driveway and upstairs from where she spends her days.)

“Well, Mom, you’ve worked hard all your life. Maybe it’s time to just enjoy your life.”

“How do you know about my life?”

“Well, because I’ve known you my whole life.”

“Are you related to me?”

“Yes, Mom. We are family.”

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I then went back to reading the menu, looking somewhat frantically for the waitress to ask a question and then, hopefully, to order for us both.

She continued to talk.

“So, in some way we are related. So would it be all right if I asked you about that and we kept talking about it?”

I did not immediately reply.

“I take it from your silence that you’re not interested in a relationship with me?”

I looked up suddenly, momentarily a little confused myself! “Yes, Mom, I’m very interested in a relationship with you! That’s why I come and see you every few days, that’s why we go out to lunch together.”

“You come to see me every few days? Me? Are you sure it’s me you see?”

“Yes, Mom, I’m sure it’s you.”

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“Well, why can’t I remember that?”

“Because remembering is hard for you now, Mom.”

“I better get to the doctor!”

“We’ve been to the doctor, Mom. We’ve been to lots of doctors. I’ve taken you to doctors for the last eight years or so.”

You have? Why would you do that?”

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“Because I love you and because you wanted to find out what was wrong with your memory.”

Then, out of the blue, “I really need to go the bathroom.” So I got up, helped her to get up and we headed down the ramp just behind our table. Just then, the waitress arrived (thank goodness!) so I asked a question, got the answer I needed and quickly ordered.

Mission accomplished, we were back in our places in ten minutes.

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The questions began once again, heading in slightly different directions:

“I’m a Christian – are you a Christian?” (This particular topic was brand-new this week.)

“Yes, Mom, I am a Christian.”

“Well, that’s good. You know I used to be quite a spiritual person. And I think I need to be spending more of my time praying.”

“Well, praying is one of the best things you can do with your time these days, Mom.”

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“You called me, “Mom.” Why did you call me that?”

“Because  you are my mom, and I am your daughter.”

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“I’m your mom? Did I give birth to you? Did I take good care of you?”

“Yes, Mom. You have birth to me and you took very good care of me.”

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You’re really my daughter? Why, that’s wonderful news!!”

 

Yes, Mom. I am really, truly, forever your daughter. No matter how many times in thirty minutes I have to tell you that truth.

I am your girl.

You are my mama.

And I am exhausted.

 

When I brought her back to her room, I remembered to check her closet for the personal supplies that I provide for her care. She was out of everything. So a trip to CVS was in order, requiring a careful shuffling through my collection of coupons and discounts. I loaded my car, returned to the facility and a volunteer, seeing me fully loaded, pushed in the code required to open the door to her unit. 

As soon as that door opened, I saw my mama rushing (and I do mean rushing, moving faster than she ever does when we are together) toward the door, shouting, with a frown on her face: “Leave that door open! I’m going out!”

Ah, no, Mom. You are not going out. As much as you might like to go out, it is not to be. 

There were no jokes today. No threads of hymns, no singing. Confusion reigned completely this time. 

On my return visit, she did not see me. She did not know me at all. I was simply the one who opened the door and she wanted OUT.

I find myself praying that the way out will come near, near, near.

And in the middle of that prayer, heading my little Honda home, with tears building behind my eyes, I remembered the rest of this morning’s sermon: “Get thee behind me, Satan,” Jesus said to Peter. “Get thee behind me.” 

‘Behind me.’

Oh, Lord. Help me to place myself behind you. Not leap ahead into the future, not try to force anything by the (oh-so-limited!) power of my will. Not second-guess, not over-worry, not even ask ‘why?’ 

My mother is who she is. She is where she is. And despite all evidence to the contrary, I will choose to believe that she, too, is safely behind Jesus, following in the only way she can — blindly, gropingly, feebly . . . but . . . oh, so faithfully. 

Help me, Lord, to honor who she is right now, incessant questions, confusion, frailty — all of it — who she is right now. Help me, Lord.

 

Looking at the Whole Truth

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“Oh, Diana,” friends tell me, looking into my eyes with tenderness and concern. “You are so lucky to have your mom still with you!”

I offer a small smile, nod my head and reply, “Yes, I know that I am.”

And I do know that. I do. But there is also this other truth, ever-present and insistent. The hard, hard truth that the lovely old woman inhabiting my mother’s body is not at all the mother I have known for most of my life. She is beautiful to see, kind to everyone around her, breaks into old hymns multiple times an hour, and loves to visit the outside world.

But she is not my mother. At least, not in the ways that I wish she could be.

That woman, that mama, has been slip-sliding away for nearly a decade now, steadily losing pieces of herself. And as she drifts further and further from me, I feel as though there are large chunks of me fading into the ether right along with her. Huge chunks of my own history are gone forever, never to be found again. 

I miss my mother. I miss being known by her. I miss sharing history with her, I miss swapping stories, wrestling with hard truths, reading books, going to the movies, taking trips, making fudge, having her give me driving directions, watching her interact with my children and grandchildren, marveling at her insight into people and situations, laughing at her ribald jokes. 

She is here with me in physical form, and for that I give thanks. But she is not here in any of the ways that make her my mother. She is a beautiful, loving, sometimes forlorn, and very old woman. On July 6th, she will be 95, a fact that startles her every time I tell her. Last week, she turned to me and asked, “I wonder who I am?” 

I wonder who I am! 

Ah, Mom. I wonder, too.

 

As I stood under the shower’s spray this morning, I offered small prayers of thanksgiving:

     “Thank you, Lord, for hot water and plenty of it.”
     “Thank you, Lord, for my good husband and his careful attention to our finances.”
     “And thank you, Lord, for my sweet mama . . .”

And with those words, I found myself sobbing. Not gentle tears these, but hard-wrought, heart-felt, gut-wrenching sobs. “Where is this coming from?” I wondered. Most of the time, the tears are far away these days, leading me to believe that I have come to some place of peace and acceptance about the way things are. But today’s meltdown reminds me that below the surface, my own emotions about mom’s situation are deeply unsettled.

My only brother arrives today and I will be glad to see him and his wife. But we four aging children must have a difficult conversation this afternoon. We have a scheduled meeting with the finance guy at Mom’s care facility, that place where she is safe, well-cared for, loved. The cost of her care is climbing while her small investment account is diminishing, so we’re looking for answers today. How can we best manage her care? Will she be alright?

The better, and I hope bigger, part of me is not worried about this, trusting that there will be enough, that God will provide a way for this daughter, this faithful Jesus-follower, this disciple. But I found myself crying out to the God we both love this morning, asking how long? and, are you there? and, why? 

No answers appeared in the shampoo bubbles. Not one. Nothing but the strong sense that the invitation continues to be this one: trust meTrust that I see your mama, that I love her, that she is safe. Trust that your own love and care for her are enough, that you are doing the best you can, that she has not been abandoned. Trust that there will be enough.

Enough.

And so I will choose to do so. We four will be as careful, mindful and loving as we possibly can. And God will carry us through. 

In the meantime, I will call to mind that image I was given over four years ago now* — that image of my small mama, held safe within the immense sacred heart of Jesus Christ, the One who was present before the universe was breathed into existence, the One who sees each of us with eyes of love and concern, the One who is the only place of true safety any of us will ever experience.

I am trusting that that image will carry me through whatever lies ahead.

 

*I wrote a lengthy post with lots of photos about how that image was given to me here.

 

Full to the Brim . . .

Some days are like that. Just full, mostly of good stuff — gratitude, relief, satisfaction, contentment. Today was that kind of day for me. This helped:

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a 15-minute power walk on a wide beach this afternoon

The last few weeks? Not so much.

Two different days in the dentist’s chair, two overnight, quick turn-arounds to southern CA, one for a Grandparents’ Day, one for a memorial service for a friend of forty years. Unseasonably hot weather, with a rainstorm thrown in here and there, aching muscles from who knows what, a shorter fuse than usual, which I always find slightly disorienting. Who’s here right now, making me feisty and discontent?

It was Lunch with Mom Day again today, something I love more each time I do it. The change in my mom’s meds has wrought a near-miraculous change in her demeanor and happiness level. As I gazed at her sweet face across the table from me today, I found this glorious sense of fullness moving right up into my eyeballs and then spilling gently out onto my face. I am stunned at how much I love her, how grateful I am to see glimpses of the mama I once knew, to celebrate with her the change we both observe and take delight in. I have no clue how long this will last, but I am determined to inhale all of it for however long she’s here.

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she is savvy enough to recognize that my phone is also a camera these days!

On Saturday afternoon, we sat packed into the downstairs of our former church home, remembering with joy and gratitude the life of Roland Tabell, the Director of Worship in that place for almost 40 years. He planned his own service pretty much, and I thought some of it might be awkward and difficult. As it turned out, he knew better! About 250 of us sat and listened to a recording made about 35 years ago of a musical drama he had co-written and I helped to produce. And immediately, we were back there, rejoicing in the Lord’s gifts to us during those years. 

I think maybe that’s why our Scripture urges us so often to remember. It is good to tell our story, to celebrate it, not to wallow in it or regret it, but to re-connect with God’s work in the past as a means of re-discovering God at work in the present and anticipating its continuation into the future. We too often forget to do that, especially when we feel discouraged about the state of the world, or the state of our own souls.

People traveled from across the state and across the country to be there. Long threads were re-gathered into a lovely afternoon tapestry, one that will help sustain us, even as we return to our separate stories now.

I am grateful today. What about you?

________________________

I include here the words I was asked to share at Roland’s service on Saturday. Some who read this blog knew him and could not be there with us. And I would like to put this ‘on record’ somewhere. He was a hugely important part of our story, Dick’s and mine, and we miss him already.

Remembering Roland
by Diana Trautwein (with help from Dick)
April 16, 2016 at Pasadena Covenant Church

It was the summer of 1963. I had just finished my first year at UCLA, where I met and began dating a guy named Dick Trautwein, and that summer, Dick was recruited by some friends to join their church softball team. That church was this church. As a player, Dick was required to attend one worship service per month, and we opted to come on Sunday evenings. We sat up there in the balcony, enjoying the breeze that wafted in from the then wide-open stained glass window, listening to Paul Larsen preach and watching as Roland Tabell led the congregation in worship from the piano.

Flash forward to 1975. We were now married, the parents of three little kids, aged 7, 5 and 3, living in Altadena, and looking for a neighborhood church after six years of commuting to my home church in Glendale. We chose to come here, at least partly because of that lovely summer experience twelve years earlier, and from the moment of our first Sunday morning worship service here, with Mel White preaching, the sanctuary filled with color and creativity and Roland Tabell still leading worship and also . . . directing a choir, a really good church choir — I knew immediately that I wanted to sing in that choir, I wanted to sing in Roland’s choir.

That was the beginning of a 21-year relationship with this community and a 40 plus year relationship with Roland and Betty. I would say that those two relationships — this community of people and the denomination from which they sprang and the Tabells — have been among the very best of God’s gifts to us over the course of our 50 year marriage.

I’d sung in choirs my whole life but this church choir was different from any of them, primarily because Roland was different from any choral director I’d ever seen. He was beyond gifted, never indulged in histrionics of any kind, was uniquely open to creative new ways of doing things, was always prodigiously arranging, researching, selecting anthems of power and beauty, helping us all to be the best possible singers we could be on two hours of practice per week.

He was soft-spoken, humble, nimble at the keyboard, thoughtfully reflective, always reading, asking questions, thinking things through from a different angle. I volunteered in his office two mornings per week for about a dozen years, helping to produce both of the musicals that he and Bryan Leech created together, gathering props, organizing costumes and music folders, even painting the choir room and hanging mini-blinds in those fall colors so popular in the 1970s and early 1980s. I have photos somewhere of Clara and Larry Spence helping me to hang those dang blinds!

During the early years of our friendship, Roland and Dick discovered a shared love for tennis, and played singles with each other weekly for twenty years. As couples, we traveled together to Hawaii, with Roland doing all the planning, finding great accommodations for not much money, even setting up side trips and must-see tourist experiences for us all. I remember stepping into one of those boats at the Cultural Center on Oahu and some other tourist recognizing him from a band they’d played in together years before –a Hawaiian band. Hawaiian band? Roland? When we all questioned him about it, he tossed it off, like he tossed off the years of music in the army, and the broad knowledge he had of all musical permutations from Gregorian chant through slack key guitar. He traveled easily through every musical genre (with the possible exception of hip-hop and rap), using it all to the glory of God and the enrichment of his chosen community of worshippers.

But here’s what I remember the most about this man, and here’s where his life intersected mine in ways that were profound and transformative. Roland saw gifts in people, and he called them out. He was the first person to ask me, in all seriousness, “Hey, have you ever considered being a pastor? You’ve really got the gifts for that.” That was in the late 70’s, after I had to fill in at the last minute for someone who became ill and ended up leading an entire worship service on the fly. It took about ten years for me to heed those words and to see in them God’s prophetic call on my own life. Time and again, he gave me opportunity to use my gifts — musically, administratively, devotionally. He pushed me and he pushed others into the front of things, always ready to step back, to stand in the shadows, providing encouragement, insightful critique, and even a little arm-twisting, from time to time.

He was such a gifted man. Even more remarkably, given the depth and breadth of those gifts, he was such a good man. His presence in this place was gift, from beginning to end. He was faithful and true, strong and steady, winsome, occasionally quirky, and always interesting. I thank God for his life, I thank God for the ways in which his life intersected my own, I thank God for Roland Tabell.

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And Then . . . There Is Light

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And it looks like music and laughter.

My mama’s neurologist has slowly been re-introducing her to Aricept since the new year. Initially, her caregivers and I were not at all sure about this. She was easily frightened, tearful and terribly, terribly confused for several weeks. At the same time, we also began to notice slight cognitive improvements here and there. So we hung in there, letting her hole-y brain slowly catch on to the new med.

I am so glad we did.

About two weeks ago, we began to see noticeable signs of improvement and my mom became a much happier and more restful person to be with, generally happy to be alive, delighted to see the sunshine, enjoying the taste of good food.

And she started to sing again. Praises be.
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When I arrived to pick her up for lunch today, she was seated in her chair in the corner, with sunlight streaming through the window behind her. On her lap was one of her small menagerie of stuffed animals, this one a teddy bear, and she was speak-singing something to him.

“Hi, Mom! How are you today? Watcha doing?” I sang to her from the doorway.

“Oh, I’m just telling my friend here about the cross, that old rugged cross.”

“Great idea,” said I, “no better thing to talk about.”

And she began to sing in her quavery alto a few lines from that old hymn.

As we drove south through the hazy sunlight, she sang it off and on, until I found one on YouTube and played it for her to sing along with on my iPhone. I sang in my own quavery alto (!!), and she was delighted.

The lines of that old hymn kept reoccurring to her throughout our lunch on the wharf, showing up whenever the space between us was not filled with conversation. It has always pleased and astonished me that so many old song lyrics are still in there, somehow conserved through all the jumbled mess of her synapses. I am so pleased to hear them again. So pleased.

Always when we meet, it is happening-for-the-first-time-all-over-again. Always, she is delighted to take an adventure outside. Always, she loves driving in the car. 

Always.

There is seldom any memory of our many previous visits to the same place, especially as we are on our way. “We come out here every few days, Mom,” I tell her with a smile. 

“Are you sure it was me you took?” she asks sincerely.

“Yeah, I’m sure,” I tell her. 

“Oh, well,” she says, “My brain is kinda weird, isn’t it?”

“Yup, Mama, it is. It is.”

Today there was a large cruise ship in port. This always means many, MANY more people in the waterfront area, and more people in all the local restaurants. The wait staff at our favorite place to sit and savor the view was hard-pressed to keep up with today’s onslaught. And while we were looking out the window, talking about how many children I have and how old they are (at least five times in the space of fifteen minutes), this sweet and funny thing happened:

The words to that old hymn came out of my mama’s mouth, though this time they were spoken rather than sung. That, in itself, is a small miracle, as the tune is usually required to spark that space in her diminishing memory bank. 

“So I’ll cling to that old rugged cross,” she said.

Pause.

“And exchange it some day for a crown.”

Pause.

“And sometime in between there, it would be really good if I could have a little something to eat!”

I tell you, I guffawed. And so did she. What a delightful moment that was. A brilliant flash of the mom I have known most of my life — quick witted, deadpan delivery, followed by riotous laughter.

That was much more satisfying to me than any single piece of the meal we enjoyed together today.

With the possible exception of a phenomenal scoop of vanilla ice cream which we shared, courtesy of the kitchen, in apology for the extended wait time today.

Now that, my friends, is a very good day. Very good, indeed.

A Birthday Lunch

I took my mother out to lunch yesterday. I’d seen her five days before, for a visit to the neurologist, but we hadn’t done lunch together yet this week. Today is my birthday, and sometime this week, I wanted to be with the one who made that possible. These are the notes I jotted down after our time together.

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Mom is terribly confused and upset when I arrive at Heritage Court later than I had hoped. She cannot figure out what we are doing, wants me to go into the dining room with her, is distressed when I lead her towards the exit. This has happened more and more often in recent weeks – she doesn’t understand about ‘going out to eat at a restaurant,’ even though we’ve done it once or twice a week for the last three years.

I reassure her gently that she will begin to understand once we get into the car. Something about the forward motion of driving almost immediately calms her fears — as long as there isn’t too much traffic. She is very anxious when too many cars are around us, particularly if they are driving fast.

So we take city streets rather than the freeway; she prefers that and I do, too. She always comments on the lovely homes, wonders if they are expensive, is shocked at the HUGE number of cars on the road, the ones that move and the ones that are parked. Three times on our eight-minute ride, she asks if there are lots of accidents here.

Always, there is fear just beneath the surface. How can there not be? She cannot formulate sentences very well, she cannot see much, her hearing is very compromised and she is confused about almost everything. I’d be anxious, too. It doesn’t help that she is constitutionally wired for anxiety, but this is different from the ‘old’ Ruth. It is almost primitive, child-like and very, very sad.

The weather is a little blustery today and it doesn’t take much for mom to feel cold. Fortunately, there is only a 30-foot walk from elevator to restaurant and I hurry her inside to the waiting area. Hurry being a very relative term — how fast can you go with a 94-year-old using a walker, who walks with a shuffle and is easily exhausted?

We’re told it will be a fifteen-minute wait — a first, for us. There are students crawling around everywhere today. Apparently it was a minimum day at all the middle schools in town and every one of those kids decided to go to the mall.

A lovely small grace of this outing is The Perfect Table – a booth by the window. The only negative is that it’s harder for me to help her with utensils, napkin, food and drink when I’m sitting across from instead of next to her.

It’s been several months since we’ve been to this particular restaurant and it is immediately clear that she has taken several steps further into the mist since our last visit. She is unsure about pizza but does decide that baked potato soup sounds good. I order both. Her long-time favorite pepperoni is now too spicy, however, and she searches frantically for something to drink.

“Here, Mom,” I say, reaching across the table to scoot the glass closer to her. “Just lean over a little and sip from your straw.”

She cannot find it and panic begins to rise in me — the glass will fall into her lap, she’ll stab herself in the eye with that straw, why didn’t I sit next to her?

Apparently, anxiety is contagious.

She manages to find it and sucks greedily at the cold beverage. “Ah, that’s better.”

But it is not better, is it? And it won’t be, this side of heaven.

Today, I say it at least twenty different times: “I am your daughter; you are my mom.” It does not stick. Ever. She is always amazed. Or confused. Or both. On the way to the restaurant: “This is such a nice car. Did your parents get it for you?” “Well, no, Mom, I’m old now, long-married. And besides, you are my parent — you are my mom.”

Silence.

Then: “I am?? Well, that was pretty smart of me, wasn’t it?”

 Yeah, mom. Pretty smart. Pretty darn smart.

_______

I am grateful for my life. She and my dad gave me that great gift seventy-one years ago today, after four years of infertility, special medical treatments, and the grace of God.

I was wanted, I was loved, I was cared for. Always.

We laughed a lot in our home and we were given permission to ask questions and to search for answers. Faith, family, education, care for others — these were the values taught and modeled. My mother was my first and greatest spiritual mentor and guide. Those pieces of her are no longer available to either of us, but I choose to believe that they are still here . . . inside of me. And that I will see her again, even richer and deeper than she once was. In the meantime, I will love who she is now.

Happy Birthday to me.

I love you, Mom.

“The Communion of Saints”

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That line from the Apostles’ Creed is a favorite of mine. And All Saints’ Sunday is, too — that Sunday when we remember those saints who are ‘absent from the body, but present with the Lord,’ all of whom are forever part of the church triumphant. And there are so many. So many. The writer of Hebrews describes them as a ‘great cloud of witnesses,’ and on this special Sunday, I can almost see them, surrounding us as we worship.

IMG_6236We used an adaptation of a litany from the Book of Common Prayer on Sunday, listing off saints from years/decades/centuries gone by, leaving space to mention more recent saints, ones whom we know and love. Each communal response: “Come, and stand beside us.” And in a powerful way, I could sense them all, standing there with us, as we spoke and sang together.

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I helped with worship leadership while our senior pastor was out of town, and as always, I found that solemn procession of our gathered body intensely moving. At least 200 people went forward to pick up a lighted candle in memory of a loved one, placing it on the altar or the communion table.  Two mothers who each lost a son too early held one another’s arms as they walked back to their seats. Several congregants who lost loved parents in the last year walked by me, tears in their eyes. I placed a candle for my dad and my brother and my son-in-law; Dick placed one for each of his parents. They were glistening and guttering throughout the rest of the service, literally surrounding us with light and warmth. As that silent crowd moved through the chancel, we sang through all the verses of “For All the Saints.” We needed every single one to accommodate the crush of people who chose to remember and rejoice. 

Yes, I love this Sunday.

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Pastor Jon preached a rich sermon on the Lazarus text in John 11, taking a different tack than most: Lazarus, dead and stinking, as a model for discipleship. Oh, so SPOT ON. Why? Because Jesus is in the habit of resuscitating those who are dead. Ask me how I know.

We spend far too much time trying to prove ourselves worthy when all that is asked of us is to respond to the Word of invitation: “Come out!” And then, we are asked to help one another shed those grave clothes, to uncover our faces and let go of all that entangles and trips us. And that includes our ever-lovin’ need to save ourselves, rather than simply allow the grace of God to flow through us and then out again, into the worlds in which we each live. I needed that reminder, that kind of good truth-telling. Maybe you do, too?

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Forty-eight hours later, I had lunch with my mama, whom I love and whom I miss, both at the same time. In many ways, it would have been appropriate to carry a lit candle forward for her on Sunday. Because the mama I have known all my life — at least, most of the mama I have known — is no longer here. What remains is beautiful, that is true. But what remains is also so terribly confused.

Each time we are together, I am less able to decipher what she is talking about. The sentences are complete (most of the time) — they just don’t connect with one another. Nor do the pronouns she liberally sprinkles into each phrase have an easily discernible referent. It is always a guessing game, one that I am less and less able to play very well.

IMG_6307My sweet mama loves to go to the balcony overlook at the Mountain View Cafe in the Life Center building at the retirement community where she lives. She loves to look out at the mountains and the clouds, even though she can see only the barest outline of the landscape due to severe macular degeneration. She has now conflated some of her diminishing memories and it’s increasingly difficult for me to pull apart the tender threads and make any kind of sensible response to the running commentary she offers.

But we always smile at each other. And we laugh, wherever and whenever we can. And we enjoy our food. It was colder than usual at lunch and my mother is always cold. So she wore two jackets — hers and mine — and sipped on hot tea until it was no longer hot. And she ate the first half of her cheeseburger with sighs of delight over every bite. Then, a few minutes later, I asked if she’d like to eat the other half. And she looked at it. And she looked at me. And she asked, with a worried tone, “What is that??”

“What is that?”

Oh, mercy me.

“That’s the other half of your sandwich, Mama. The one that you said was so good.”

She picked it up, thoroughly confused as to which end was which and at the words ‘so good,’ immediately said, “Yes! It was good.”

And she began to eat.

I battled tears on the way home, missing her so much. Not wanting her to leave, but somehow wishing that neither of us would have to lose any more pieces of her before she goes home to Jesus.

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It was a glory day today , and that helped. A true central California fall day, just about the first one we’ve enjoyed thus far in these six weeks of autumn. 

I took her back to her room, sat her in her recliner, with her feet up, and covered her with the cozy fleece blanket our daughter gave her for Christmas a couple of years ago. She was happy, calm, content.

And then I went home. Grateful down to my toes for the communion I enjoy with this saint in my life — the one I have today, and the one who is no longer here.

_______________

Here is the prayer I shared at the communion table, working from Jon’s description of his sermon earlier in the week. It wove its way nicely through the words that he shared. It never ceases to amaze me how the Spirit does that with our words — weaves them together, even when we are unaware of it.

A Prayer for Communion — “All We Like Lazarus”

Sunday, November 1, 2015; All Saints’ Sunday; Montecito Covenant Church

Here we are again, Lord. Gathering ‘round your table,

this place where we are reminded every month that we are bodily creatures.

Yes, indeed, all of us here have bodies — young, old, healthy, sick, strong, weak. We have these bodies that eat and move — some more easily than others — with minds and mouths that think and pray, and wonder and argue. Sometimes, these bodies even dance and sing.

Right now, they are sitting still, and we’re trying to focus our wondering, wandering minds on the good truths Jon has shared with us from your word this morning.

We’re here, Lord. At the table now. We’re here because you asked us to be here. Long ago, you invited us to take these simple things, this bread and this cup, and to eat and drink them together.

Together.

There’s something important about that part, isn’t there? And on this Sunday, we’re reminded more strongly than ever that when we gather these bodies of ours in this place, it’s not just we who are here. On this Communion Day, this All Saints’ Communion Day, we are more aware than we usually are of that ‘great cloud of witnesses’ to which we belong as earthlings. Thank you for the saints who have gone before us, thank you that in some way we cannot begin to fathom, they are still with us.

All of us together – saints on earth and saints in heaven – want to take just a moment to set aside these table gifts this morning. First, we want to thank you for them. To say thank you for the simplicity of them, for the everydayness of torn up bread and lukewarm grape juice. And second, we ask you to bless that ordinariness, and to infuse this simple ritual, with its familiar words, to infuse it with your presence, your holy presence that sees us, exactly as we are, and welcomes us here, nevertheless.

Help us to hear your call to ‘come out,’ dead and stinky though we may be. And help us to help each other loosen those grave clothes — all those things that bind us and hinder us from fully following after you.

Yes, Lord, even as we eat this blessed bread, and drink this set-aside cup, remind us that we do it together.

Lazarus is our model today, will you help us to learn from him? And there are other saints who can teach us, too. Saints whose lives tell the story of your powerful restorative and transforming work. And the truth is, sometimes, those saints are us. You are doing that good work in us.

Help us to tell our Lazarus stories to others, and help us to hear them from others, too. Too often, we forget to do either — to tell or to listen. Forgive us for that, Lord, and for the too many other ways in which we falter and fail, we fumble and flail.

But as this table so beautifully reminds us, your grace is more than a match for all of our faults. For this is a table of life! Even as we remember your death, Jesus, we do it in light of the resurrection. And all that is dead and dying in us can be redeemed, called out to newness of life.

Glory!

Hallelujah.

Amen.

31 Days of Aging Gracefully: Day 23 — Being Honest

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I took my mama off campus for lunch this week, the first time in many weeks I’ve been able to do that. She has tired more easily and so have I, so we’ve settled into the routine of putting her into the smallest of her unit’s wheel chairs and slowly walking over to the charming cafe that is now a part of her retirement community. 

But the weather was glorious, and if El Nino comes to pass, it will not long be that way (thanks be to God! We SO need the rain!), so we went. 

And it was lovely, and sad, and good, and hard. One thing I’ve committed to doing, even though many dementia experts discourage it, is telling my mom the truth. Unlike Dick’s mom, my mother knows that things are not right inside her head, and occasionally — if we’ve sat together quietly long enough, she will ask me about it

And I always tell her the truth.

“How come I don’t remember that you are my daughter? How come I don’t remember being married? How come? Why can’t I think?”

So I tell her.

“Well, Mom, it’s nothing you’ve done, it’s just something that happens sometimes when brains get old. Yours doesn’t work like it once did, but that doesn’t mean you aren’t still you. And I’m here. I can be your memory for you, okay?”

And she is always relieved. Yes, I still get the same, question-of-the-day-whatever-it-might-happen-to-be from her, but she is calmer, steadier, more restful when we’ve talked about this situation as honestly as we can, given her limitations now and my own inarticulate attempts to explain the unexplainable.

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She is so very dear. And so very lovely. And I love her so very much. Yesterday, she asked, “Was I a good mother to you?” And I was moved to tears to tell her how very good a mother she was, to me and to my brothers. 

“Brothers? I have a son?”

“Yes, Mom, you have one son still living.”

“Oh, I’d love to see him.”

I remind her that he calls her on the phone, that he lives very far away and that he’s dealing with some health issues of his own. And she is peaceful.

In ten minutes (or less) she will have forgotten all about it.

Yesterday’s through line question centered around being sure she had my phone number. I told that she does, and when we got her back to her room, I showed her where it is. Of course, she can no longer read it, can no longer use the phone herself. But telling her the truth somehow eases her dis-ease. And if I can do that, then I am happy to be her truth-teller.

It dawned on me the other day that I am currently the only person in her life who sees my mother.  Who sees her for ALL of who she is, who she is now, and who she once was. I’m it. And that makes me feel more lonely than I could have imagined.

31 Days of Aging Gracefully: Day 14 — Valuing the Old

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Of course today’s topic is one close to my heart. I am graced to have my 94-year-old mama still living. I myself am now 70. I am personally familiar with old things. And old people.

But you know what? We are not a society that particularly values old anything, maybe most especially people. That is painting with far too broad a brush, I own that. But there are times when it surely feels that way. I’m not sure it’s entirely intentional. We get busy, our lives are full, there is more energy to be found in the company of younger folk. I get it, I’m guilty of it, I know it.

But.

The sixteen people who live in my mother’s Alzheimer’s unit were once thriving, contributing members of society, living lives rich in friendship and family. Now, many of them seldom see any young face other than that of their closest caregiver — the one who is paid to be there.

I myself am deeply, DEEPLY grateful for those paid friends. My mother’s life is incredibly richer and safer because of the place where she lives. And for a long list of reasons — most of them to do with my own emotional and physical limits — I see my mom only about every five or six days. For years, I called her nightly on the telephone. Now, that is too confusing for her, so I stopped doing that this summer. It was both a relief and an opening for yet another kind of grief, deep within me.

I love my mother very much. I miss my mother very much.

Yet she is still here.

And the pieces of her that remain have been lovely to see for the last two years or so. Just in the past two weeks, however, I have seen a deepening level of confusion and ‘lostness,’ which come yoked with an exponentially deeper sense of panic that permeates almost all of our ‘conversation’ of late. Three days ago, she was frightened to use the bathroom before we left for lunch, sure that someone was going to get her wet (she now hates the shower.) And she insisted that she had never been to the Cafe before, though we have been there at least once each week for the last six months.

“Are you sure it was me you took here?”

“Yes, Mom. I know you. It was you. You are Ruth Gold, right?”

“Yes, I am. But there must be another Ruth Gold because I’ve never been here before,” she said in a frightened, trembling voice.

I patted her arm, told her I was going inside to order our lunch and left her, sitting at the counter, peering at the view with a troubled look on her face.

Seven or eight minutes later, I returned with her diet coke in hand and told her the cheeseburger would be coming soon. She turned and looked at me, much calmer, and said with conviction, “I think that other woman must have left.”

Clearly, she had been thinking about our earlier conversation, something she is generally unable to do. Something about it hit her deep inside, requiring her to ponder and try and figure out how she could be so lost. Her conclusion was unbearably sad to hear.

Yet something deep within me resonated strongly with that so-sad sentence, that oh-so -carefully prepared sentence. Because she was right, you see. That other woman has indeed left, never to return this side of heaven.

And oh, I miss her so.