Archives for May 2015

Tapestry — SheLoves

The themes over at SheLoves this year have been rich and provocative. This month: fabric. You can begin this meandering piece here and then follow the link over to one of my favorite magazines in order to read the rest:
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This life we live is a woven thing.

Textures, colors, strengths, weaknesses, flaws, beauty, warmth, breathability — a wondrous, complex, sturdy fabric of relationships, experiences, emotions, encounters, learning and un-learning.

Weaving in and out of each of our stories are some glorious threads that glisten and shine; and then there are those others, the darker ones that cannot reflect light at all. Sometimes, the tension between the two can feel chaotic, without design or beauty. We can feel buried under the weight of it all as the loom of life pulls and pushes us in ways we might not choose to go.

When those days come, I try to remind myself that the fabric that is me is only one small piece of the much larger work God is creating across time and all around this universe. And that larger piece is a design of such magnificence that not one of us can even imagine its depth and beauty. Those ‘thin places’ we talked about last month sometimes give us a peek, a hint, of what God is up to in the ongoing creation of life. And that old cliché — the one about seeing only the backside of the tapestry God is weaving? Yup, I think it’s true.

There are those days when we catch a glimpse of the front, though. Moments when the glory-light shines in and our lungs feel like they’re breathing heavenly air. In the fabric of my own life, there have consistently been some glittering threads, ones that make me gasp with gratitude and sigh with recognition and relief.

Please come over and join the conversation at SheLoves! Just click on this line.

The Mystery Remains


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Once again, I am overwhelmed by your response to a post about my journey with my mom. It never ceases to amaze me how great an epidemic this is in our land, how many people are walking this hard, painful road through the death-by-inches and loss of self that is dementia. Thank you for your kind words and your stories — they mean the world to me, and to everyone who reads through that long comment thread.

This week has been one of gradual healing, slowly regained mobility and living right smack dab in the middle of deep wells of gratitude. I’ve spelled out a few reasons why in today’s newsletter (you can subscribe at the bottom of this post if you’d like), but I will just say here that the human body is both fragile and miraculously resilient and I am celebrating the gift of my own body in ways I never have before.

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I have abused this vessel for many years, in many ways: too many calories, too little exercise, too much stress. Slowly, slowly, I am learning to appreciate how very well it has served me over my life and I am living more fully in it than ever before. That is no small gift for a little girl who hated her height/skin/hair/self and always felt awkward and clumsy. 

The bruises from my time with mom on Mother’s Day are healing as well. I dropped off some supplies two days later and as she saw me, her eyes welled with tears and she said, with great hesitation,”Are you still mad at me?”

I almost wept again.

Somewhere in the confusing tunnels of her brain, she knows that she has upset me. And she is sorry for it.

I am sorry, too.

A trusted friend and counselor said to me this morning, “You know, Diana, your letting go of that Coumadin is a strong metaphor for the way in which you must let go of everything else that makes you bleed.”

Everything else that makes me bleed.

Well, wow.

Exactly.

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I must continue to learn how to let go of these old wounds, to offer them to my Savior as a means of grace, to say ‘thank you’ for the good gifts first and forever, to release my mother’s ultimate care and safety to Another.

I am not now, never have been, and never can be responsible for her health and happiness. That is the lie that she and I have believed for far too long and it must be jettisoned. It must be.

We cannot, any of us, be ‘the answer’ for another human person. It is not possible, nor is it desirable. We can be instruments for healing, we can be companions on the way, we can laugh and cry and worry and wonder with one another. But we cannot, we must not, we dare not ever try to fix one another.

We don’t have that power. Thank God.

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There is only one source of Healing in this universe, and it pours out on us all day after day, in mess after mess, through trial after trial. It shows up in medicine, psychology, friendship, good marriages, good parenting, healthy politics (is there such a thing?). But the Source is the same. Everything  that is good and right in this universe comes from God alone.

Not me.

Not you.

Through me, hopefully, yes. And through you, too.

But we do not have to generate it, invent it, or even package it. We simply have to allow it. That is all. 

So I am learning again to say, “YES.” With as much of me as I now know, I say, “Yes.” 

And I say, “Thank you.”

Missing Her, Missing Me

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Would it have been better not to try?
Outings are rare and exhausting for me these days,
but this is Mother’s Day, right?
And she is my mom,
my much-loved mom,
my disappearing mom,
losing pieces of herself from minute to minute.

I’ve been at home since the scary thing,
going out only for lab results,

a few groceries here and there.
My husband got the flu very late last week,
something neither of us needs me to deal with,
so we’re both on meds and holding our own.

Maybe I should have just called it a day
and talked to her on the phone.

But she misses me when I’m not there,
even though she has no idea how time passes,
cannot remember that I have been injured,
and doesn’t always know who I am.

She knows that she loves me. That I’m ‘wonderful,’
that I’m important to her.

So I went.
I stayed home from church to do it.
I carried a lovely big hydrangea,
a pretty new scarf.
My brother sent chocolate covered
strawberries, which we enjoyed after
the meal.

After lunch,
I scurried around her room, 

making space for the flowers,
tucking the scarf in a very confused-
looking drawer.

And then we sat down for a visit.

Oh, it was a strange one,
one that stirred deep things in me,
including anger and tears.
Both of those have been lying around,
latent, contained,
for a long while now.
But occasionally, when ignited,
they flare and wound.

Before this stage of the disease,
my mother could often wield her
tongue as a weapon,
implying things with her wry,
sarcastic humor,
startlingly able to make me feel guilty
with just a word or two.

(Why do mothers have such power?
Do I?
Oh, I hope not,
I try not.)

She is restless.
My mother has always been restless.
She would like to move somewhere else,
and who can blame her?
She wants to go back to where she was
before we brought here her,
that fine place south of here,
that place where they would
have locked her into a small unit, 
with no single rooms,
her friends unable to visit easily.

Back then, she and I decided to move her
nearer to me.
And most of the time,
that is reason enough for her.

And I should know by now.
I should know to just 
nod my head and say,
“It’s nice to dream, 
isn’t it, Mom?”

But somedays, I don’t seem to be able to do that.
I want her to understand,
to know why she’s here,
why she needs to be here,
why we’re out of options.

So I told her.
Again.
“Your brain isn’t working like it used to, Mom.
And I am so, so sorry. But this is a good place,
a place where they take care of you well,
and I am so near to you now!”

And then, out of the blue,
this line . . . 

“Well,
I’m just sorry you don’t think

I’m worthwhile.”

And I lost it.

“What?? What did I possibly
say to make you think that?”

“Oh, you didn’t say anything.
I can just tell.”

How could she possibly tell?
She can’t tell the time, the date,
the place, the people.

But this, she could tell?

And then it came,
lancing through me,
soul and sinew:

“You never invited me to your home.”

I threw back at her the myriad times
she has been in our home,
the birthday parties over the years,
the long weekends,
the train trips,
the Christmas Eve services since
she’s moved here.

But I knew.
I knew what she meant.
She meant I never invited her to live here,
to be cared for here.

The very thing she told me
over
and over
and over again that she never wanted

to do.
Ever.

Truth be told, I know myself and our relationship well
enough to know that we would not survive it.

And yet, I carry it with me.
The guilt, the wondering, the heaviness.
To hear her say it literally knocked the
wind right out of me.

Lord, have mercy.
Give me grace to release all of this,
the anger, the guilt, the wondering,
the fear.

All of it.

It does me no good,
and it surely doesn’t help her.

I want to love her without reservation,
and to know she is safe in you.
I don’t want to wallow, waffle or wonder.
I want to feel anchored,
loving, loved.

So this is what I will choose to
remember from our time together today.
Walking from the dining room to her room,
she began to hum under her breath.
‘What ya singing, Mom?” I asked.
“When we walk with the Lord. . .” 
she replied.

And so we sang.
We sang loudly as I moved around her room.
First verse and chorus of that old chestnut,
the one that sums it all up.
Do you know the one?

It’s called, “Trust and Obey.”

Yes, yes.
That is what I will choose to remember
from this Mother’s day celebration.

Please, God.

Only that.

When the Bottom Falls Out


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Lovely flowers, brought to me by my fine son while in the hospital this week.

It has been a strange and difficult week, one that I wrote about in detail in my newsletter, which went out on May 1. If you’d like to read that account, simply subscribe, using the link provided at the end of this reflection, and I’ll be sure to send you a copy.

But in this, more public space, I want to spend a few minutes reflecting on what often feels like the capriciousness of this life we live in our earthbound home. 

Sometimes things happen suddenly, coming from left field and slamming into your gut, throwing you completely off balance, leaving  you stymied as to what in the heck just happened. I cannot even count how many times in the last six days I have uttered the words, “I cannot believe this has happened.” 

And I can’t.

Except it did — I was hit with a sudden, life-threatening condition, putting me in the hospital for 48 hours and sending me home to rest and move slowly for about a month. Say what?

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The beautiful new hospital wing I was privileged to stay in, as seen from my window.

The combined effect of the event itself, the powerful pain medications I was forced to take to survive, and the complete disorientation of being in a hospital and then coming home again, unable to do the things I do every single day of my life — well, it’s a more than a little bit unsettling.

Who am I? In my own mind, I’ve always been the strong one, the capable one, the one who takes charge and gets ‘er done. I’ve said it before in this space — I’m a large person, an increasingly confident person, have been known to be ‘bossy’ in my time (though I’ve worked on that quite a bit!), and I like to be the person who is helping others, not so much the one in need of help.

At this moment in time, that is no longer true. It is not even close to being true.

My amazing adult children rallied this weekend. Both of my daughters brought their youngest sons and they shopped at Costco and cooked in my kitchen all day yesterday. I now have two fridges full of home made chili, salmon chowder, delicious quiches and bunches of good, packaged salad mixes plus an enchilada tray from the Big Box store we all hate to love. Our son and his wife came over for dinner, bringing their lively, fun girls and I could listen to everyone having a great time together — best medicine possible. I was even able to be up with everyone for dinner, and that was a gift. But I was not the one doing meal prep or clean-up. I cannot be right now.

As I struggle to recapture some sense of balance and wholeness, I take deep joy in thanking God for the lovely slingshots of grace amidst this chaos — our son’s fine medical instincts which sent us back for a second ER visit and ultimate stay; the care of the best medical team I’ve ever seen, the loveliness of our new hospital and its nursing staff, the grace of business colleagues who have extended some deadlines for us, and the sheer fact that I am here, breathing and upright (some of the time!)

Here is the deepest truth I am learning right now: we simply do not and cannot know what is around the next bend in the road. For me, that bend was the simple act of rising from bed on a Tuesday morning. We plan, we program, we research, we scout out contingencies. But we are not in charge of our own lives, at least in any ultimate sense, are we?

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The other view from that window in the hospital room. There IS a bigger picture.

I am not downplaying planning — believe me! We have done some good, healthy planning and we are in good shape for this last bend in the road, this last leg of the journey. But we assumed it would be an easier leg than it has proven to be — and those assumptions now need to be set aside.

A good friend said to me on the phone this morning: ”This is the new normal, Diana.”

Yes, it is. The new normal is the unexpected, the sudden, the quick drop in the pit of your stomach when you realize the entire universe is shifting on a very tiny pivot. Very tiny indeed.

But what I’m trying to remind myself — sometimes from moment to moment — is that none of this is a surprise to God. And I am not alone in the midst of the terror and the pain.

I am held, I am cherished, I am seen.

And that makes all the difference.

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